waffnap wrote:I had this treatment last summer three times a week over a six week period. I was fortunate as I was refered to the hospital by my dermatologist and the cost was nothing. It was great, my arms were clear and I didn't feel concious of showing my arms for the first time in five years. The legs are the most difficult part of the body to clear apparently and although this area did improve it is still there. I would definately have this Treatment again it felt like a miracle if only for a short while.
hkluth wrote:Hi - I'm new here so I haven't read through everything yet. I'm just starting the Phototherapy too (only 2 very short treatments so far). I have PA and the psoriasis is on my hands only. Unfortunately, it is all ten fingers and the palms - so trying to do anything with my hands is painful and difficult.
My Dermatologist has me putting on an ointment with 10 mg CP Oxsoralen Ultra mixed into it about half an hour before doing the UVB Light Therapy. The ointment is to make the light work better. I'll be doing this treatment starting at 1 minute and increasing an extra minute with each time until I'm up to 12 minutes at a sitting. They tell me that it takes up to 20 treatments before I'll notice any changes so it's too soon yet to know if this will work.
So far since being diagnosed a year ago, I've tried lots of herbal remedies, lotions and creams to moisturize and then moved to antibiotics, steriod creams prescribed by my doctor. She referred me to the Dermatologist I'm seeing now and since there we've tried Clobex lotion, Clobex spray, Enbrel injections and now the light therapy. If this doesn't work, she wants me to try a series of Chemotherapy drugs- not something I'm looking forward to...
Do we have anyone with RA here that has been cured or put into remission with Phototherapy?
AznBoi101210 wrote:If someone has done phototherapy, I was wondering if you could describe to me what they do. I am willing to try it, but I am afraid of showing it, even in front of family. This is extremely hard to do since I am only 14, but I have felt this sickness makes me 80. I have it in most parts of my body and luckily my "special someone" actually understands... I am hoping this phototherapy will help, but I just wanted to know what they do.
Users browsing this forum: No registered users and 144 guests