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hi im new here

PostPosted: Mon Mar 27, 2006 9:35 pm
by firefly01
Hi everyone,

just wanted to say Hi :D i'm looking forward to chatting with you all and finding out any new ideas for lotions and potions to help with my P .

takecare Firefly xx :P

Re: hi im new here

PostPosted: Fri Mar 31, 2006 8:46 pm
by Nick Balgowan
firefly01 wrote:Hi everyone,

just wanted to say Hi :D i'm looking forward to chatting with you all and finding out any new ideas for lotions and potions to help with my P .

takecare Firefly xx :P


hello Firefly and welcome. Have you had any success with any lotion or potion in particular?

I used diprisone for so long that my skin became thin and fragile. needless to say, I don't use it anymore ! temporary relief at best, but some people swear by it.

PostPosted: Mon Apr 03, 2006 7:23 pm
by firefly01
Hi Nick,

At the moment i am using Dovobet Ointment it's a little greasy but it seems to work for me at the minute,i am also using Borage oil i put about 8 drops into my body moisturiser and use daily.I have had P for 30rys and have tried and tested many things eg:Alternative therapies,changing my diet(which i am not very good at ) but hav'nt tried the Dead SEA yet which is said to be amazing.What i have learn't over the years is not to burn the candle at both ends and to take tme out of my busy life for some TLC.
Having a site like this is FAB :D to be able to share ideas and to talk to people who know how you may be feeling.

Takecare Firefly xx :)

cream skincap

PostPosted: Sat May 13, 2006 12:30 am
by rsantia
just picked up skincap seems to help quite a bit
but it hurts on the sensitive area very painful
ciao

Re: cream skincap

PostPosted: Sat May 13, 2006 7:19 am
by Nick Balgowan
rsantia wrote:just picked up skincap seems to help quite a bit
but it hurts on the sensitive area very painful
ciao


Although the manufacturer of Skincap now says their product is steroid free, this certainately was not the case previously, please see here; http://www.beatpsoriasis.com/skincap.htm IT contained several powerful steroids without mentioning this on the label. It landed the supplier in hot water with the FDA and other health authorities around the world. They sent samples to psoriasis associations all over the world, it recieved fantastic reviews until it was tested by a laboratory....

PostPosted: Fri May 19, 2006 2:33 am
by hkluth
Yikes!!! :shock: My Dermatologist has me using Clobex lotion and more recently Clobex Spray (5%) - which is Clobetasol Propionate. At least it is sold as such and I have read the circular on it but results and side effects didn't seem to be as dire as I'm reading out here and other sites. We are also starting UVB therapy with CP Oxsoralen ointment but she wants me to continue with the Clobex spray.

Should I be more concerned or is this safe for long term?

steroids

PostPosted: Fri May 19, 2006 8:23 am
by Nick Balgowan
hkluth wrote:Yikes!!! :shock: My Dermatologist has me using Clobex lotion and more recently Clobex Spray (5%) - which is Clobetasol Propionate. At least it is sold as such and I have read the circular on it but results and side effects didn't seem to be as dire as I'm reading out here and other sites. We are also starting UVB therapy with CP Oxsoralen ointment but she wants me to continue with the Clobex spray.

Should I be more concerned or is this safe for long term?


Hi,

Steroids are a perfectly valid treatment when used in moderation and knon dosages. The problem with things like Skin-Cap and Skin-Zinc and Blue-Cap is they contained MULTIPLE STRONG steroids mixed in very large quantities for "shock and fast" results. Many properly medicated steroids are in very low dosages and probably largely safe. But the warnings are probably the same. Typically a steroid may be used early in treatment for immediate results and relief, but followed with phototherapy or other treatment for the longer term relieft. Steroids by themselves, particularly long term, would be counter productive and potentially dangerous. If you are being supervised by a good dermatologist you should be in good hands - but also do not neccessarily take this for granted either!

give welcome firefly

PostPosted: Sun Aug 20, 2006 9:04 pm
by BigDaddy
firefly01 wrote:Hi Nick,

At the moment i am using Dovobet Ointment it's a little greasy but it seems to work for me at the minute,i am also using Borage oil i put about 8 drops into my body moisturiser and use daily.I have had P for 30rys and have tried and tested many things eg:Alternative therapies,changing my diet(which i am not very good at ) but hav'nt tried the Dead SEA yet which is said to be amazing.What i have learn't over the years is not to burn the candle at both ends and to take tme out of my busy life for some TLC.
Having a site like this is FAB :D to be able to share ideas and to talk to people who know how you may be feeling.

Takecare Firefly xx :)


welcome again firefly - I think this place to great. I have not been back for a while due to work committments, but I've learnt so much new stuff about psoriasis today I'm heading to the store tomorrow to pickup a few things to try, includinga bunch of cherries!

Re: cream skincap

PostPosted: Sun Aug 20, 2006 9:06 pm
by BigDaddy
rsantia wrote:just picked up skincap seems to help quite a bit
but it hurts on the sensitive area very painful
ciao


yikes, I wouldn't touch the stuff seeing their dodgy advertising practices.